I had a lot of questions when I was first diagnosed–both with inflammatory bowel disease (IBD) and with common variable immunodeficiency (CVID). I still have a lot of questions. It has been suggested that I grill my doctors unmercifully and that I have “trust issues” but you are talking to a woman who was originally told that CVID was a viral infection caused from eating raw fish (not true) and was awake during her last colonoscopy and endoscopy and not by choice. Any “I unthinkably put myself into your hands, dear doctor” inclinations were wiped out with that last example. Since I do not plan to stop grilling my doctors anytime soon, you can benefit from my pathology.
So, while there are a lot of other sites where you could get better information (and hopefully, I have remembered to include links to them), these pages include the things that I wanted explained in a way that I would have appreciated.